Sunday, April 4, 2010

Happy Easter! And Wow. This Post is Way Overdue.

I apologize for my delinquency in posting updates...but in this case, no news really is good news. Torger's continuing to do really well in his recovery. He's now had two rounds of vaccinations, so he's about at the same point as a four-month old infant in terms of building up his immunities. This has made us a little more comfortable being out in crowds on occasion, but we still have to be careful. His stamina is not what it used to be, and things like having to stand in line for some time can really knock him flat. His next round of vaccines won't happen until his next transplant anniversary in the fall, so for now, we're kind of in a holding pattern. He's down to one daily pill, his anti-viral...but that didn't prevent him from picking up a nasty cold bug in February. That was a little bit scary. We both had it, and it was a mean one that gave us both bronchitis. Our doctor said it was turning into bronchitis or pneumonia in a lot of cases, so we were both very worried about Torger getting pneumonia. It was the first really big test of his new immune system, and fighting it really taxed his system. But he made it through! So we continue to feel encouraged...and we're looking forward to the end of this LONG winter. There was snow in our yard non-stop from November to mid-March! But things are warming up, and Torger's able to get outside a little more, although he still has to limit his sun exposure. He still deals with occasional bouts of GVHD on his skin, mostly around his eyes, and sun exposure can make that worse. So he's being careful, but getting out to walk or ride his bike whenever he can.

That's it for now. I'll post again (in a more timely fashion) as soon as there's anything new to report. In the meantime, Happy Easter!

4 comments:

Marcy said...

Wasn't it Easter two years ago that you mentioned how Torger had been bruising really easily lately? Wow.

Anonymous said...

It was...and I agree: wow.

Jean said...

Dear Cara and Torger,
My name is Jean and I’m a volunteer with the National Bone Marrow Transplant Link. Our organization helps patients, caregivers, and families cope with the social and emotional challenges of transplant from diagnosis through survivorship by providing vital information and personalized support services. We subscribe to Google blog alerts, where we found your story.
Please know that others are thinking of you and pulling for your complete recovery! To learn more about our programs and services, please visit www.nbmtlink.org or call 800-546-5268.
All the best!
P.S. I'd like to offer you a copy of our recently published "Survivors' Guide for BMT: Coping with Late Effects" if you send your mailing address to me at jeansjones@gmail.com.

kapahlke said...

Is this the Torger who went to Boulder High class of 74? If so, this is Keith Pahlke,
email me at keith.pahlke@alaska.gov